In January 2020, I was diagnosed with Stage IV Endometriosis through surgery and the removal of a 10 cm endometrioma. I was in the hospital for 8 days and during that time had been transferred to the critical care unit where I received 1:1 nursing care and a blood transfusion because I had lost so much blood during the 4 1/2 hr surgery.
I wasn’t upset that I had endo, I had suspected it all along. I was upset that the previous gynecologist I had been under the care of brushed off all my symptoms as Dysmenorrhea and “normal” cysts.
She felt I was too young at the time (21-26) and didn’t want to create further issues for me. After 10+ years of excruciating pain, heavy periods, multiple cysts on my ovaries, food intolerances, I finally had a diagnosis. Part of me felt relief, part of me felt grief. Grief because I suspected I had Endometriosis since I was 20. My doctor at the time felt I was too young to explore through laparoscopy and didn’t refer me to a specialist. She could have done something to help me, even if it wasn’t helped directly from her.
But I decided that the past is just that. There’s nothing I can do but own this. I will have Endometriosis for the rest of my life. There is no cure. But what I can do is advocate, and be supportive of others who are struggling as well. I’ve found the most amazing community of people by sharing my story, using my voice, and bringing awareness to a chronic illness that is hushed and made silent. Endo has brought me so much pain, has triggered my anxiety and depression, has made normal day to day activities a struggle for me. But, it won’t break me down or change my heart. I’m a warrior who stands among 176 million other warriors world wide!